Where do I begin....? We have so many people to thank for all they have done since this whole journey began. From the beginning of October when I was first placed on bedrest, all through the twins hospital stay and even up to now. So many people have done so much for our family and words will never be able to express our true feelings of appreciation for all of you. But I shall try....
I want to thank everyone most of all for your prayers that covered us during this time. I knew without a doubt that someone was daily praying for the boys and us. Thank you to our church family, Central Baptist-Sulphur Springs, for all the meals you provided our family while I was on bedrest for 2 1/2 months. What a blessing!
Thank you to everyone who saved and sent coke tabs for the Ronald McDonald house. We received coke tabs from all over the country, including: Bowie School-Sulphur Springs, Como-Pickton School, Gladewater Church of the Nazarene, Green Acres Baptist Church-Tyler (the Adult Choir and Kidzpraise-especially Angie Smith and Vickie Johnson), West Texas, Mississippi, and Pennsylvania!! Awesome! Thank you guys so much! We were unable to use all of the tabs we received so we have passed them along to some families who have some children who are very sick and could really use them.
Thanks to everyone for the calls, cards and gifts.
A special thanks to families at Green Acres and Central Baptist for their generous gifts that helped with food and gas on our many trips to Dallas.
Thank you to my family who pitched in and helped when they could. My sister, Bethany, who traveled from Tyler once a week to clean my house.....what a gift! Thank you to Rob's parents for making sure the kids got back and forth to school every day and piano lessons, etc.
A huge thanks to Rob and my kids! They learned jobs they've never had to do before and I learned how to let those jobs be done and accept the outcome. They were all troopers!
I hope I haven't left anyone out. If I did, I'm so sorry and if I think of it, you'll get your very own blog post:-) Most of all we are so thankful for the prayers, for we know the miracles we have been blessed with! We are amazed at God's awesomeness and his blessing of entrusting us with 2 more of his angels!! Thanks everyone!
Wednesday, May 2, 2012
Thursday, April 26, 2012
Eye Update
Just a quick update about our visit to the eye specialist. Josiah's eyes are great. The vessels have developed the way they are supposed to. Gideon's still look the same as they did 2 weeks ago. The doctor said he has a "funny-looking vessel" in each eye that he is wanting to keep an eye on, but he doesn't need more shots at this point. He feels pretty confident that the vessels will eventually develop correctly, but wants to continue to monitor them. So we go back in 3 weeks. Dallas was much less stressful than Paris! Crazy, I know! I was one of only 4 people in the waiting room! It was awesome! So I'll take the traffic over the "standing-room-only waiting room"! Thanks for the continued prayers!
Other than that, the boys are doing great! They are weighing 8 lbs now! Josiah got the great honor of being circumsized a couple of weeks ago. It has taken a while for that to heal and not be painful to him. So, Monday, Gideon gets the same honor. Heaven help all of us! This has been a great educational experience for all the Stanley children. It helps to have a "before" and "after". So everyone wants to see Gideon and then Josiah to see what exactly he had done and why. It's great (insert sarcasm). Especially for Isaac. He has been going around telling everyone that Josiah had his wee-wee cut off. Nice. I tell him, "No, he hasn't. He had it fixed where it looks just like yours." Isaac's response, "But, my wee-wee's not cut off!" The logic of a 3 year old :-/
Friday, April 13, 2012
Tornadoes, Easter & Doctors...Oh My!
Well, I've gotten a little behind, so I'll try to briefly update on the past two weeks. Last Tuesday was packed with excitement for us. Personally, I've decided I can live without ANY excitement in my life...but it's not to be. We knew that storms were supposed to be heading our way, so we were keeping an eye on the radar at my office. It was looking like it was going to hit us about the time the kids got out of school. About 2:30, it was getting very dark, so I decided to go ahead and pick Isaac up from the day care that's only about 3 blocks away. As I was running out with him, the rain began. We went back to the office, where Rebekah got dropped off at 3:00. By then, the rain had stopped, so as soon as I got her, I flew the mile down the road to pick up the twins. Still not raining! I headed to the middle school to get the 3 big kids. About 3:25, it's still not doing anything, but getting darker. I was texting Rob and he told me they were holding their buses. Great, I thought. So I asked him if I should go home or stay in town. He told me to stay in town. We live about 20 miles outside of town and it looked worse at our house than in town. By now I knew we were under a tornado warning and I just began to pray that the weather would hold off 10 more minutes and the middle school would let the kids out. I considered going in and getting the kids, since I saw some parents doing that, but hated to leave the 4 little kids in the suburban. I was in a quandry and beginning to feel just a tad bit anxious. At 3:30, it began to rain (of course) AND the sirens began to wail all over town! OH MY WORD!! Full-blown panic was trying to set in! I did not have all my chicks under the protection of my wings and I was not dealing well with it. SO, I decided I was going to get the other chicks! I got Rebekah, Isaac, Gideon and Josiah and we headed across the field in front of the school to go get the others. Once we got inside, we heard that they were not letting any of the kids go....they were under lockdown, also. There were kids and parents lining every hallway. We hung out 5 or 10 minutes when the school said the threat was over and we could get our kids. So I had them call all 3 kids to the front. Aaron made it, but the other 2 did not. The sirens started again and they made the kids go back into the hallways. Now what do I do? I was letting the fear overwhelm me and keep me from thinking clearly. All I wanted to do was get ALL my kids and go home! Once I realized they weren't going to let the other 2 go, I sent Aaron to the suburban with 3 of the little ones. I soon followed with the other because I was more concerned about them in the car then the ones in the school. We sat in the car about 15 more minutes when I decided it was enough. I was going to get my kids! They told me I could go get my kids, I just had to find them. I knew about where they were...the hall that was the farthest away! So I was finally able to gather them up and get everyone together. Thank you Lord! That was 4:30 and they let the kids go at that time. We made it home in between storms, but a bad one was headed towards our house. So I put everyone in the laundry room and we hung out there while a fierce storm passed over us complete with hail hitting the windows. Thankfully, that was the worst of it. Rob was still not home at this point. They had put the kids on the buses to bring them home and the sheriff called and told them to get them back in the building. He finally got home at 6:45!! Man, what a day! God protected us and kept us calm, even through my anxiety and fear. The babies slept through it all:-)
Easter weekend was great. The kids showed their steers in Mineola and did very well. Sunday morning we actually got everyone dressed up, took a picture and made it to church on time. WOW!
Update on the boys' eyes: We went back to Paris to see the eye doctor. UGH! Our appointment was 12:15 and we saw the doctor at 2:15 and, yes, the waiting room was standing room only again! Josiah's eyes look good. Gideon's was not so good. The doctor is seeing signs of the eye disease coming back and he may have to have the shots in his eyes again. We go back in 2 weeks for him to check again and decide what to do. I respectfully requested to be sent to the Dallas office and not to come back to Paris:-) I may regret it, but 2 hours in a full waiting room with 2 hungry babies is not my idea of a good time!
The boys are doing really well. They slept last night from 11:00 until 5:00. Sweet! Ok gotta go clean up the 3 year old and feed the babies. A mother's work......
Easter weekend was great. The kids showed their steers in Mineola and did very well. Sunday morning we actually got everyone dressed up, took a picture and made it to church on time. WOW!
Update on the boys' eyes: We went back to Paris to see the eye doctor. UGH! Our appointment was 12:15 and we saw the doctor at 2:15 and, yes, the waiting room was standing room only again! Josiah's eyes look good. Gideon's was not so good. The doctor is seeing signs of the eye disease coming back and he may have to have the shots in his eyes again. We go back in 2 weeks for him to check again and decide what to do. I respectfully requested to be sent to the Dallas office and not to come back to Paris:-) I may regret it, but 2 hours in a full waiting room with 2 hungry babies is not my idea of a good time!
The boys are doing really well. They slept last night from 11:00 until 5:00. Sweet! Ok gotta go clean up the 3 year old and feed the babies. A mother's work......
Saturday, March 31, 2012
The Suburban Blues
Let the drama continue.....You ever have a day where you KNOW you should have stayed in bed? Friday was that day for me! I have gone back to work this week so when Rob leaves to drive his school bus, I have about 20-30 minutes to get the 7 kids in the suburban or we will all be late. I don't think I mentioned that we bought me my very own suburban over Spring Break. I love it! It is very nice and even has a button I can push that brings the brake and gas pedals closer to me! Awesome for short people like me:-) BUT I can't drive it right now because we don't all fit in it. We need a bench seat in the middle-hopefully that will happen next week. Anyway, so I've been driving Rob's suburban this week. So we all get loaded up Friday and get ready to leave and as I walk around to get in, I notice the front tire-----it's flat! Nice! So I tell the kids unload and move to my suburban and they can just squeeze up in the back. So we unload car seats, car seat bases, kids, backpacks, trumpet, clarinet, lunches, etc., oh yeah, babies too:-) We get everybody in my suburban, I go to crank it.....Nothing! No click-click, no wrrrr-wrrr, complete silence! Really??!!! Yes, I can't make this stuff up. I honestly considered going back to bed, but I had a meeting at 1:00. So I knew I had until then to figure out what to do. One problem, my brain wasn't functioning on a full night's sleep so no solution was even coming to mind. So we unloaded again and went in the house. Then I decided that we just needed to change the tire. So I got to work with the kids helping me. We didn't get very far when Rob called and told me to air up the tire and pull over to the other suburban and jump it off. That's why I keep him around! It took about 15-20 minutes, but we got it aired up enough to move it next to the other one. But, alas, the riding lawn mower was in my parking space and had to be moved. Guess what? It had a flat and wouldn't crank:-) So the boys and I just pushed it out of the way. That was my first time to jump off a vehicle, so I was very excited when it cranked and nothing exploded! So we loaded back up AGAIN and got the kids to school by 9:30. The babies slept through it all!
The boys have had a good week. Josiah rolled from his stomach to his back 2 times tonight. Gideon is almost 7 pounds. They are growing so fast already!
The boys have had a good week. Josiah rolled from his stomach to his back 2 times tonight. Gideon is almost 7 pounds. They are growing so fast already!
Monday, March 26, 2012
Home at Last
Gideon is finally home!! He arrived Saturday and as many of you said "Let the fun begin!" OK, well, I'm still waiting for the fun:-) Three hours of sleep last night....not so fun:-( And Gideon isn't the problem, Josiah is having some tummy issues or he really has me snowed and thinks he should be held 24/7. Right now I can tell them apart, but the kids are really struggling. If you just take a quick glance at their faces, they are hard to tell apart. I have to look at the shape of their head. I'm trying to refrain from using the permanent marker, but we haven't ruled that out yet:-) Isaac is constantly asking me, "Is this Gideon or Josiah, mama?" The kids have been awesome with them. They love to hold them and are really good at calming them down when they are fussy. The boys are on the same feeding schedule, at least. Josiah will polish off a bottle in 10 minutes flat. Gideon likes to savor his and take about 30 minutes! Gideon weighs 6 lbs 8 ozs and Josiah is 7 lbs. They are continuing to grow and thrive. AND Josiah rolled over Friday!!!! What??? He's too little for that, you say! That's exactly what I said. They scoot in circles on the floor and off their blanket. Amazing! I have to keep reminding myself they weren't born last week, even though they look like it. Stay tuned for updates on their eyes and my expression of thanks to everyone!
Thursday, March 22, 2012
Rachel's Story
We were supposed to pick Gideon up Wednesday. We kept the kids out of school and were planning to go get him and then go to Rachel's doctor appointment. As we were getting ready to walk out the door, the doctor called to say he couldn't go home today. He got a "little" upset during his eye exam the night before and they had to give him oxygen, so he wasn't ready to let him go home, maybe Saturday. So we are just in a holding pattern, praying he doesn't have any more episodes and we can bring him home this weekend. We shall see.
We still had to take Rachel to Scottish Rite for her appointment so we all loaded up to go do that. For those who don't know, Rachel is our other miracle. She is our 12-year old daughter, twin to Samuel. When she was 8 years old, she began to have trouble getting around. She had to have help brushing or washing her hair, tying her shoes, getting up from the floor, going up and down stairs and she would fall easily. We finally found out she had dermatomyositis. Her immune system was overworking, attacking her muscles. This is why she was so weak. She was trying to get ready for the soccer season, but she just couldn't keep up with the other girls anymore. The doctors immediately started her on IV and oral steroids and methotrexate shots. She did the IV steroids for a year and was gradually weaned off the oral steroids about a year later. She is now being weaned off the methotrexate as well. God has healed her body and she is now in remission. At her last visit, the doctors changed her meds to pills instead of the shot. Yesterday they lowered her dose to 4 pills once per week. In 4 months when she goes back, they'll lower it to 3 pills. So by next August (2013), she should be off all meds completely! That is an amazing answer to prayers! I'll never forget our first visit to Scottish Rite and she couldn't even bend over to pick a pen up off the floor. Now she aces every muscle test they throw at her. Last year, she had her best soccer season yet. Through it all, she has kept a positive attitude and a smile on her face.
So if anyone ever tries to tell you God doesn't perform miracles any longer, just send them my way. I've got 3 beautiful miracles (well, 7 actually) to show them:-)
We still had to take Rachel to Scottish Rite for her appointment so we all loaded up to go do that. For those who don't know, Rachel is our other miracle. She is our 12-year old daughter, twin to Samuel. When she was 8 years old, she began to have trouble getting around. She had to have help brushing or washing her hair, tying her shoes, getting up from the floor, going up and down stairs and she would fall easily. We finally found out she had dermatomyositis. Her immune system was overworking, attacking her muscles. This is why she was so weak. She was trying to get ready for the soccer season, but she just couldn't keep up with the other girls anymore. The doctors immediately started her on IV and oral steroids and methotrexate shots. She did the IV steroids for a year and was gradually weaned off the oral steroids about a year later. She is now being weaned off the methotrexate as well. God has healed her body and she is now in remission. At her last visit, the doctors changed her meds to pills instead of the shot. Yesterday they lowered her dose to 4 pills once per week. In 4 months when she goes back, they'll lower it to 3 pills. So by next August (2013), she should be off all meds completely! That is an amazing answer to prayers! I'll never forget our first visit to Scottish Rite and she couldn't even bend over to pick a pen up off the floor. Now she aces every muscle test they throw at her. Last year, she had her best soccer season yet. Through it all, she has kept a positive attitude and a smile on her face.
So if anyone ever tries to tell you God doesn't perform miracles any longer, just send them my way. I've got 3 beautiful miracles (well, 7 actually) to show them:-)
Monday, March 19, 2012
More answered prayers
Just a quick update to let you know that Josiah's eyes are much better! The procedure worked and the disease is regressing! Thank you Lord! The eye doctor doesn't need to see the boys for 3 more weeks. Josiah is continuing to do well. We are hopeful that we will bring Gideon home this week. It was supposed to be early in the week, but he had a couple of bradys on Thursday so they want to watch him until this Thursday. He's on "brady watch"! Sounds like something between the Brady Bunch and Baywatch, idk! Crazy! Anyway, so hopefully Thursday will be the day. The eye doctor is supposed to look at Gideon tomorrow when he's at the hospital, then I can take them both to see him in 3 weeks. Taking twin babies to the standing room only doctor in Paris doesn't sound like a good time to me;-( But it will be entertaining, I am guaranteed that!
Friday, March 16, 2012
Birthdays and Miracles
Today Rachel and Samuel are 12 years old! So hard to believe I'm about to have 3 teenagers. Aaron does not enjoy this 2 1/2 months because he is also 12 until May 4. Fun times! Gideon is doing great! He is off everything. No oxygen, no feeding tube (since he ripped it out twice), no meds, no more respiratory therapy....it's awesome! He should come home early next week. He weighs 5 lbs 14 ozs, but he looks bigger than that because he has a triple chin:-) So cute! He has come so far since his 1 lb 9 ozs! He passed his car seat test, too. I think he finally decided it was time to go home and I think the nurses are ready, since the other day when he pitched such a fit he made himself throw up. Nice! He had an MRI on Wednesday for his head and everything looks good. I'm amazed when I look at them, at the miracles they are! Josiah is doing great as well. He goes back to see Dr Spencer on Monday to see how his eyes are doing. We went to the pediatrician last Monday and he weighed 6 lbs 8 ozs. I think he's getting spoiled. He's happy as long as someone is holding him or paying him some attention:-) I guess that's why he's happy most of the time because he gets plenty of both.
Sunday, March 11, 2012
Josiah's week
I have to give props to the NICU nurses at Baylor. They have a very demanding, 12-hour per day, job and they take care of the babies and the parents with a smile on their face. AND before they send you home with your little bundle of joy they get him on a 4-hour feeding schedule!!! Woo-Hoo! You can set the clock by this boy. He begins to wake up about 30 minutes before he eats, feed him and he either goes back to sleep or he'll stay awake for a while looking around. He's only had a few fussy moments when his tummy hurt or his feeding was late. Like the other day in Paris when we had the follow-up with the eye specialist. OH MY WORD! I walked into the waiting room and it was standing room only! The receptionist says "He's running an hour behind", but the nurse says "We'll get you in quick because I know he only wants to check his eyes because of yesterday's procedure." Great! So I didn't wait 1 hour.... I waited 2 hours!!! They don't want you to feed him in case he spits up during the exam and might aspirate, so Josiah went about 6 hours between feedings. He was NOT happy with me at all! The doctor didn't see any change yet, but saw no sign of infection or complications. But we made good friends in the waiting room with several folks. I mean, we spent a lot of time together....we bonded!
Tomorrow the boys will be 3 months old. Gideon is only on .01 on his oxygen, you can't get any lower than that. So hopefully this week he'll come off that and start taking all of his bottles. He is taking most of them, but every now and then still has to have some through his tube. They are getting him ready, so it won't be long now!
Tomorrow the boys will be 3 months old. Gideon is only on .01 on his oxygen, you can't get any lower than that. So hopefully this week he'll come off that and start taking all of his bottles. He is taking most of them, but every now and then still has to have some through his tube. They are getting him ready, so it won't be long now!
Wednesday, March 7, 2012
Happy Anniversary and an eye exam
Today Rob and I celebrate 14 years of wedded bliss. That averages out to a kid every other year! LOL!! If only....! That might've been easier:-) The hospital called yesterday and the eye specialist, Dr. Spencer, wanted to see Josiah before next week, so we went to his office today in Dallas. We left home at 10:00 for a 12:30 appointment and got back home at 5:00. Long day! After looking at Josiah's eyes, he really felt he needed the shots like Gideon had to keep his retinas from detaching. But instead of having him go to the hospital for it, he did it in his office. Sweet! except I can't watch:-( He puts a clip in Josiah's eye to hold it open and literally uses an unbent paperclip to help him examine the eye. Just thinking about it makes me almost pass out! I was glad he did it today so I didn't have to drive back to Dallas tomorrow. BUT he wants to see him tomorrow in his Paris office to check him again. At least I can handle the driving better. SO ready for Spring Break. Gideon is doing much better on his oxygen, he is on minimal amounts. He still isn't taking only bottles, so not sure how long before he gets to come home. They would be 38 weeks today! People at the doctor's office kept asking me how old Josiah was. When I said 12 weeks, they were a little stunned since he's not even 6 lbs.
Monday, March 5, 2012
Always an Adventure...
Josiah is now home!!! He's been snoozing on dad most of the evening. He is doing great so far, eating every 4 hours. The eye doctor looked at him and said his eyes are the same, so he'll just see him at his office next week. The kids have been so excited to finally meet him. Isaac just grinned all the way home. He kept asking, can he walk? can he crawl? can he talk? can he eat ice cream? At one point he said, "Mom, why does no mean no?" Samuel and Rebekah couldn't keep from touching him and poor Rachel just had to look from a distance. She is running fever. We got the call to come get Josiah around 10:30. I gathered up all the kids and Rob, we came home and got the suburban, and headed to Dallas. We went through Chick-Fil-A for Rob and I some lunch and about that time Isaac started crying. He said "My throw-up hurts." After asking him 150 questions about what hurt, did his stomach hurt, did he need to go potty, etc, we pulled over and got him out. He didn't seem pale, but he convinced us he was going to throw-up. But no luck! So we gave him the Chick-Fil-A sack and told Rachel to watch him and use the sack if he needed to throw up. Yes, poor Rachel was the unlucky one who sat in the back with him:-) After about 5 minutes, he was crying and sticking his head in the sack. Picture this....we finally get to bring a baby home and we're headed to Dallas with a child who's bawling and sticking his head down in the Chick-Fil-A sack. Really???? Are we dreaming? This can't REALLY be happening!! Oh yes it can. This is our life!!! He then declared he needed a potty. So we made it to Rockwall, found a gas station and I took him in. No luck! So I questioned him some more. This is when he said "My throw-up hurts" and pointed to his throat AND he told me his stomach didn't hurt. SO, smart mom that I am, I finally realized he meant his throat hurt. Rob asked me if I had looked at it. Well, there's a novel concept! Didn't think of that! (No, I hadn't actually) So I looked and guess what... it was swollen to his uvula (that's the hangy-down thing). BAD MOM! Never fear, 2 tylenol and a push-up pop and all was well again. We finally made it to the hospital, just took 3 hours:-) We go to get on the elevator and 2 women act like they can't decide if they want to get on or not. They finally decide to get on after Rob almost lost an arm trying to hold the door for them. Well, one lady barely made it on, she was weaving pretty bad. We got to their floor and the other lady just about ran into the wall of the elevator when she was trying to get off... I think she was having trouble pinpointing exactly where the door was in her condition. You gotta watch those elevator doors...they'll move around on ya:-/
I guess we are experienced enough as parents, Rob signed a few papers, I fed Josiah, we told Gideon good-bye and we were outta there! We were home before dark. It was hard to leave Gideon, but I know he'll be with us soon. He's doing better on his oxygen, but there is a chance he may have to come home on some oxygen and the heart monitor. We'll see how he does over the next week. Josiah weighs 5 lbs 14 ozs and Gideon is 5 lbs 5 ozs. They are amazing little miracles and I'm overwhelmed at how good God is. Thank you everyone for your prayers! Please continue to pray that we get Gideon home soon and that they get through the rest of RSV season with no issues. Let the adventure continue!
I guess we are experienced enough as parents, Rob signed a few papers, I fed Josiah, we told Gideon good-bye and we were outta there! We were home before dark. It was hard to leave Gideon, but I know he'll be with us soon. He's doing better on his oxygen, but there is a chance he may have to come home on some oxygen and the heart monitor. We'll see how he does over the next week. Josiah weighs 5 lbs 14 ozs and Gideon is 5 lbs 5 ozs. They are amazing little miracles and I'm overwhelmed at how good God is. Thank you everyone for your prayers! Please continue to pray that we get Gideon home soon and that they get through the rest of RSV season with no issues. Let the adventure continue!
Sunday, March 4, 2012
Ready or Not.....
The playpen is set up, the changing table is ready, the car seat is ready, the suburban now can carry 9 people...we are ready!!! We just need a baby:-) or two! The nurse practitioner called today and basically said we won't know anything until the eye doctor looks at Josiah tomorrow. If he needs the eye procedure, he will have to stay, but if he doesn't need the procedure, he can come home Monday! How's that for planning! It's very tricky to plan, yet not plan. I stayed home yesterday to get things ready and even hung some curtains that we bought about a year ago! Rob has started working on a garden. It was nice to get some things on our list done. The NP said they will try and lower Gideon's oxygen level this week, but there's a possibility he may have to come home on oxygen. I will post as soon as I am able after hearing from the doctor.
Wednesday, February 29, 2012
Leap Day Update
Gideon weighs 5 lbs now!!! The eye surgeon came by last night while I was there, to check Gideon's eyes. He said they look great! He will continue to monitor him because the vessels are still developing and he could develop problems at any time. I cuddled with them last night. They are getting so big! I'm amazed at how far they've come. Josiah weighs 5 lbs 8 ozs. He had another brady (dip in his heart rate) yesterday. He is supposed to go 7 days without one in order for us to bring him home without a heart monitor. I think it had been 5 days since he had one. Josiah no longer has a feeding tube so all feeds are by bottle and he's taking about 60 cc's every 4 hours. Gideon was taking a bottle today and got a little choked up so they stopped and gave him the rest in his tube. Rob has an appointment to get 2 bench seats put in the suburban, making it a 9 passenger vehicle. The fun never ends!
Monday, February 27, 2012
Disappointment
Well we don't get to bring Josiah home Wednesday. The doctor called today and said the eye doctor had looked at his eyes and he is showing signs of Stage 3 Retinopothy of Prematurity (RoP), which is what Gideon had. The eye doctor will check him again Monday and then determine if Josiah needs the same eye procedure that Gideon had to have. So he told us we could go ahead and take him home Wednesday, but we would have to go to Plano to see the eye doctor Monday and if he needs the eye procedure, we would have to re-admit him to the hospital. We both agreed it was best for Josiah to stay put until the doctor determined what needed to be done. So while we're disappointed that he won't be coming home this week, we continue to trust that God has a plan. Who knows? That increases the chances of them coming home together. Gideon is on 1 liter of oxygen and doing very well. He has taken 2 bottles so far today. Gideon weighs 4 lbs 14 ozs and Josiah is 5 lbs 7 ozs. Please pray that all goes well with Josiah's eyes.
Saturday, February 25, 2012
Hopkins County Steer Show
What a week!!!! We've survived a milestone birthday AND a steer show....and did it with style:-) But first, the best news of all....Josiah should be coming home Wednesday!!!!! He is doing well and if he has no major issues between now and then, we'll go pick him up and bring him home that day! He no longer has the feeding tube! I am excited and a little nervous too. WHY? It's not like I haven't ever done this before. He's about the size Samuel was when we brought him and Rachel home and yet I feel like I'm bringing home a baby for the first time. Maybe it's just because of how early they were and what problems they have had and could have, but I have to realize that fear and anxiety is not from God. I must remind myself to rest in Him and trust Him for the outcome. I mean, hasn't He proven that over and over with these boys? So I will remind myself what He has brought us through so far and know that He doesn't leave us just because we are bringing the boys home. The nurse last night seemed to think Gideon could possibly come home the next Wednesday. He is doing better on his oxygen and hopefully they will lower that again this week. He has taken a bottle the past two days. The kids are getting excited about meeting their brothers for the first time!!
The kids (Aaron, Rachel and Samuel) showed their steers last night at our county show. This is what they work all year to prepare for. Aaron got 4th in his class, out of 6. Rachel was in the same class and got 2nd. Samuel was in a different class and got 1st place! Then he made Reserve Champion!!!! (This is the 2nd best steer of the 24 steers that were there) He was SO excited!! Rachel won this award last year, so he had already declared it was his turn! So now they both have a championship belt buckle. I guess next year will be Aaron's turn to get a buckle. Rachel also won Intermediate Showmanship for the 2nd year in a row. This is where the judge is looking at the kids and not the animals. It still surprises me a little when Rachel walks in the ring. She is so calm, no matter what her animal does. She has an air of confidence about her and...oh yeah.... and then she smiles! Seriously....what judge wouldn't pick her! Her whole face lights up and her eyes sparkle and suddenly I see what a mature and beautiful young lady she has become! It's an awesome thing to see. Aaron did really well in showmanship as well. He and Rachel and another young man we have shown with for years were the top 3 in showmanship. I think all 3 bring out the best in each other! That's what I love about showing. They are all very competitive but when they step out of the ring they slap hands and congratulate each other for doing so well. Oh, and all 3 Stanley's made the SALE!!! Woo-Hoo! That's what they've been working for all year. So today we go for the sale and awards. Rachel will get a blanket for winning showmanship and Samuel will get his belt buckle! I'll go see the babies tomorrow since I can't breathe today, after being in the barn all day yesterday! Good times!
Tuesday, February 21, 2012
5 pounds!
Josiah hit 5 pounds last night! He's doing good on his bottles, but still not able to do only bottles. So it will be at least next week, but hopefully it will be next week, when he gets to come home. He's doing really well! Gideon was finally lowered to 1 1/2 liters on his oxygen and he's doing well at that level. He weighs 4 lbs 7 ozs. They have put him on 2 new meds, both to try and help get his oxygen levels down. I went to see them last night and we just snuggled! Nothing else new....so tired....going to bed:-)
Friday, February 17, 2012
Bath Time
I went to see the boys last night and gave them their first tub bath!!! So exciting! They were wide awake the whole time and seemed to enjoy it. They weren't fussy about it at all. They were sound asleep when I got there because they had been loved on by Mimi and Papa and Aunt Bethany and Aunt Blair, so they had a big day. Gideon wasn't happy with me for waking him up but he got over it pretty quick. It only took me 2 HOURS to bathe both of them!! Really????? I'm thinking we may adopt the hillbilly method of only bathing on Saturdays! WOW! We were all exhausted when it was over. Gideon took his pacifier and went fast asleep. I started giving Josiah his bottle, but he was really getting tired. I had to leave before he finished just to get home before I went to sleep! Gideon had another brain scan yesterday and the nurse told me the ventricles in his brain are shrinking (which is what we want). They have reduced from .75 to .5 and they are looking much better. That is an overwhelming answer to prayer!!! His head size is looking normal now and his eyes seem to focus better since the procedure they did. He looks so good! Gideon weighed 4 lbs 6 ozs and Josiah weighed 4 lbs 12 ozs. Josiah looks great too! The nurse felt like Josiah might be coming home next weekend, but I don't know. He took 3 bottles in a row yesterday, but didn't get very far on the third one. He has to be taking all his feeds by bottle and he doesn't always want to wake up to do that. She said if not next weekend, she felt like for sure the first weekend in March. Woo-Hoo! BUT not little Gideon. After I gave him his bottle the other night, the nurse had to raise his oxygen to 60%. She was afraid he had aspirated, but after running tests they said he didn't. So we can't give him any more bottles until he's come down on his oxygen. He knows what to do, so hopefully after he gets off the oxygen he'll take off with the bottle-feeding. So will Josiah get to come home for my birthday????? (That would be Thursday and a bittersweet, significant, monumental, historical, SAY WHAT?? day that lines up with my "Advanced Maternal Age"!) SIGH..... OR Will it be the day of the county show where we are showing 4 steers and will be busy all day Friday and Saturday????? Stay tuned.....
Tuesday, February 14, 2012
Happy Valentine's Day
Happy Valentine's Day, everyone! Sorry it's been a while since I updated. Hope your honey is being sweet to you today. I went to see the boys by myself last night and didn't get home until 10:30. When I woke up this morning I had a dozen pink roses on the table and homemade cards from all the kids with a list of things they are going to help me do this week! So sweet! I especially loved Aaron's card (my 12 year old) who drew a picture of me and him, where he is much taller than me:-) I am beginning to have to look up at him, but not THAT much! At least Rachel didn't draw a picture of me wearing her shoes (since I borrowed her boots Sunday):-\ The boys are doing really well. Dr. Spencer, the eye dr, was supposed to see Gideon today, but haven't heard if he could tell anything yet from the medicine. Gideon weighs 4 lbs 1 oz now!!! Josiah is 4 lbs 8 ozs!! Such big boys! They are on straight formula now and they increased both boys feeds today. Josiah is doing great eating from the bottle. I got to feed Gideon his first bottle last night!!! Yay! He only took about 12 cc's, but for his first one, he did great! Gideon is back into his open crib now. He is doing much better on his oxygen. He's still at 2 liters but holding pretty steady at 30%. BIG NEWS: Josiah is off the caffeine. He has to be off it for 7 days before he can come home! This is the first test. He has to also be taking all feeds by bottle and he has to pass the car seat test. I took his car seat to the hospital. They will put him in it for 2 hours (since that's how far away we live) and he has to not have any major breathing or heart episodes while he's in it. OH MY! To think he could be home by the end of the month is very surreal. He just has to keep doing good on his feeding! I'll keep you updated. I'm loving getting to hold and snuggle with them. I held both of them together last night. Of course, even at 4 lbs your arms go to sleep! Rachel and Samuel are both sick with high fever and headaches. Flu test was negative. Doctor thinks it's viral:-( Just praying I don't share that with the babies AND that no one else here gets it. Gotta go.....my sweetie is taking me out on a date. Don't know where we are eating, I think he's going to surprise me. Whatever will we talk about, just the two of us??? THE KIDS, I'm sure:-)
UPDATE: I just spoke with Gideon's nurse and she said the eye doctor said Gideon's eyes look better and he believes the disease is regressing!!!! Thank You Lord for answered prayers! He isn't going to check him again for 2 weeks! Did I mention that we serve an AWESOME GOD??? Just sayin'......:-)
UPDATE: I just spoke with Gideon's nurse and she said the eye doctor said Gideon's eyes look better and he believes the disease is regressing!!!! Thank You Lord for answered prayers! He isn't going to check him again for 2 weeks! Did I mention that we serve an AWESOME GOD??? Just sayin'......:-)
Friday, February 10, 2012
Update
Gideon's procedure went well. It only took a couple of minutes. They numbed his eyes so he didn't feel a thing. He just sucked on his pacifier the whole time and handled it like a champ! It will be a couple of weeks before we know if it worked. The doctor said he would check on Gideon again next week. Thank you everyone for your prayers. While I was a little anxious since I couldn't be there, I felt at peace about it because I knew so many people were praying and that God was in control!
Thursday, February 9, 2012
Prayer Request
Gideon's eye exam did not go well. His eyes had gotten worse. So at 10:00 in the morning, the eye doctor will be performing a quick procedure where he injects medicine into Gideon's eyes. This medicine should keep the retinas from detaching. If it doesn't work, there is a laser treatment that they can try as well, but the doctor said this medicine is very effective. We got to see them tonight and I held both boys. Gideon was wide awake and alert and looking around the whole time. He's very serious, whereas, Josiah will smile a lot more. They are both continuing to gain weight and will be weaned to formula this week. Gideon is still continuing to have drops in his oxygen and breathing rates. It is suspected these might be caused by reflux so the nurses are going to try laying him on his left side and slowing down his feedings. Hopefully that will work. Thank you everyone for your prayers!
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